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Your Turn...(Readers: Please note that we have deleted the names, addresses and phone numbers of the people who have contributed their experiences and ideas to "Your Turn". However, we would be happy to direct your inquiry or communication to them. Please contact us through our email: help@bmtnews.org, by phone: 847.433.3313 / 1.888.597.7674, by fax 847.433.4599, or by mail: BMT Newsletter 2900 Skokie Valley Road, Suite B, Highland Park, Illinois 60035. Thank you.) “I am interested in forming a support/discussion group for BMT survivors in the Cincinnati area. I am a registered nurse and also a BMT survivor. If you are interested, please contact me.” KW,OH “We are working on a program to ease the transition back to school after children undergo a BMT or PSCT. We would like to hear from people who’ve had experience with such transition programs.” Please contact CR, MA “I would like to hear from anyone who has had trouble maintaining their blood and platelet counts following an ABMT for breast cancer.” RS, NY “I had an ABMT in July 1994 for non-Hodgkin’s lymphoma. Things went well, but as of November 1995 my blood counts are still low. Have other patients experienced this same long-term low blood count?” SH, OH “I would like to hear from from women who survived a BMT for leukemia, and later had a successful pregnancy using a donor egg program.” AD, IL “I’m a 28-year-old male, and a 1-year survivor of a PSCT for testicular cancer. I’m having trouble finding a job, due to my medical history, and have lost old friends who don’t understand that cancer is not something you can catch from another person. I’d like to talk with someone who’s experienced similar problems.” ST, FL “I am 51 with recurrent non-Hodgkin’s lymphoma. Since May 1994, I’ve undergone chemo, radiation and a BMT. I am now undergoing radiation again. I’d like to talk to others who’ve had a similar experience to discuss treatment options or life style changes to manage recurrences.” JC, MA “I’m 30 years old, and will have a BMT for recurrent ovarian cancer. I would like to hear from others in my age group who’ve undergone this treatment.” CV, NJ “I would like to talk with anyone who has had a second BMT or PSCT for multiple myeloma.” TS, FL “My cholesterol count has been 360 since my PSCT in July, 1994. I’d like to know if others have experienced this problem.” EM, CA “I ‘inherited’ eczema from my BMT (a small price to pay) and wonder if anyone has found non-steroid treatments or nutritional changes for this that have been successful.” SR, CA “I would like to talk with anyone who had Stage IV breast cancer that metastasized to the liver and who is disease-free 2 years or more following a BMT or PSCT.”FO,CA |
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