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News bits... The Leukemia Research Foundation and the Cancer Wellness Center will sponsor an educational forum entitled “Everything You Wanted To Ask a Bone Marrow Survivor… But Were Afraid To,” Sunday, April 18, 1998 10 am - noon. The forum, featuring Blood & Marrow Transplant Newsletter editor Susan Stewart, will be held at the Cancer Wellness Center, 215 N. Revere Drive, Northbrook IL. For information phone 847-424-0600 or 847-509-9595. BMT-Talk, an electronic (e-mail) mailing list for bone marrow, stem cell and cord blood patients and survivors, has a new address. To subscribe, send an e-mail message to: listserv@listserv. acor.org. Enter the message: Subscribe bmt-talk <first-name> <last-name> (If your name is Mary Jones, you would enter: Subscribe bmt-talk Mary Jones.) Send other messages you’d like other list subscribers to read to bmt-talk@listserv.acor.org. If you have problems e-mail laurel@ai.mit.edu. Cancer Care Inc. is hosting a series of teleconferences of interest to cancer patients, survivors, family members and health care professionals. The first “Support for Family Caregivers: Coping Strategies” will take place April 29, 1998. Two others, designed for health care professionals, will focus on “Sexuality and Fertility After Cancer” and “Cancer Pain.” They will take place April 1 and April 8 1998 respectively. Register on-line at www.cancercare.org or call 800-813-HOPE. The 11th annual National Cancer Survivors Dayis June 7, 1998. To request your NCSD 1998 Celebration Planning Kit call 615-794-3006. The Oncology Nursing Society’s cancer information service, ONS Online , is now available to the general public. Some of the topics covered are: cancer genetics, fatigue, cancer prevention and detection, rehabilitation and survivorship, end of life issues, daily healthcare news and weekly abstracts of oncology news. The Cure for Lymphoma Foundation will sponsor a series of Living Well With Lymphoma Family Forums. The first one will take place in New York City on April 25, 1998. Others are scheduled for Chicago on June 6, 1998, and Toronto, Canada in September. For more information or to register, call Laura Villani at 212-213-9595. |
Y-Me Breast Cancer Organization has a new e-mail address: help@y-me.org. Their 24-hour telephone hotline remains 800-221-2141. The Patient Advocate Foundation will host a legal symposium entitled “Current ERISA Law Issues and Case Preparation” April 24-25, 1998 at Loyola University School of Law, Chicago IL. Keynote speaker will be Mark Hiepler Esq. In 1993, Hiepler won a record $89 million verdict against Health Net in California, for failing to cover high-dose chemotherapy and a stem cell transplant for his sister who had breast cancer. For registration information call 800-532-5274. Ordinary Women on Extraordinary Journeys: Discovering the Experiences of Midlife Women Living through Chronic Illness, is the title of a study initiated by Debbie Kralik RN, MN, MRCNA of Flinders University of South Australia. Kralik hopes the study will help sensitize health professionals to the experiences of women ages 30-49 who are living with a long-term illness. To participate in this study e-mail kralik@bigpond.com. ASCO OnLine, the Web site of the American Society of Clinical Oncology, contains useful information about cancer research and treatment. Correction: In the November 1997 issue of Blood & Marrow Transplant Newsletter, the phone number for the National Association of Insurance Commissioners was incorrect. The correct number is 816-842-3600. You may obtain a copy of the Viatical Settlements Model Act from this organization for $25 plus $3 shipping & handling.
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