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Your Turn (Readers: Please note that we have deleted the names, addresses and phone numbers of the people who have contributed their experiences and ideas to "Your Turn". However, we would be happy to direct you inquiry or communication to them. Please contact us through our email: help@bmtnews.org, by phone: 847.433.3313 / 1.888.597.7674, by fax 847.433.4599, or by mail: BMT Newsletter 2900 Skokie Valley Road, Suite B, Highland Park, Illinois 60035. Thank you.) "I have incurable non-Hodgkin's lymphoma and was recently treated with two rounds of a new monoclonal antibody called Rituximab. Happily, I did have some response to this new agent. I would like to talk with anyone else who has been treated with Rituximab more than once. I would also be willing to share my experience with this treatment." D.P. "I am 36 years old and plan to have a stem cell transplant for ovarian cancer. I have two children, ages 4 and 7. I'd like to hear from others with children who have gone through a similar experience." A.Y. "Thank you for responding to my request for help for a woman whose insurance company denied coverage for a BMT. I am happy to announce that after the local paper ran a story about her, the insurance company changed its mind! Imagine that. Thanks again." K.K. "I am the mother of a 5-month-old boy with Wiskott-Aldrich syndrome. I would like to hear from other parents with children who have this diagnosis, as well as parents of infants who have gone through a transplant for any diagnosis." P.G., email:DavidnPJ@aol.com. "I am 48 years old and have been diagnosed with AML subtype M2. I would like to hear from anyone who was diagnosed with a similar subtype of AML." M.K., email:h48@webtv.net "I'd like to hear from anyone who relapsed following a stem cell transplant, and whose cancer metastasized to the brain." L.A. "I'm 55 years old and have been recently diagnosed with CLL. I'd like to hear from anyone who has received the same diagnosis in their 50's, and has had or is considering a BMT." C.D., email: cdurka@juno.com "I relapsed 9 months after having an autologous stem cell transplant for Hodgkin's disease. I am now considering an allogeneic BMT. I need to hear from anyone who had a similar experience and underwent a second BMT. I'd also like to hear from anyone who used military insurance (CHAMPUS or TRICARE) to pay for their BMT, especially if they didn't use a military facility." A.S., email:ajoysheene@yahoo.com. |
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