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News bits... Free allogeneic BMTs are available at the National Heart, Lung and Blood Institute for patients who have a matched family donor and need treatment for metastatic renal cell carcinoma, metastatic melanoma, or are between the ages of 55-75 years with MDS, lymphoma, or leukemia. For further information, contact: Sheila Phang, 301-402-3595 or FAX 301-496-8396; or John Barrett, Chief BMT Program, 301-402-4170, FAX 301-496-8396; or e-mail barrettj@gwgate.nhlbi.nih.gov. The Oncology Nursing Press has just published Journaling Through The Storm: A Journal for Recording Personal Reflections. This beautifully illustrated four-color journal provides patients and families with a way to chronicle the many thoughts and feelings that accompany the diagnosis and treatment of a serious illness. The $12.60 journal may be ordered from ONS Customer Service, 501 Holiday Dr., Pittsburgh, PA 15220, 412-921-7373, or via e-mail at customer.service@ons.org. Understanding Breast Cancer Treatment: A Guide for Patients is now available from the National Cancer Institute free of charge. The booklet helps patients understand what a diagnosis means and what treatment options are, and suggests questions to ask your doctor. To order, call 100-4-CANCER and ask for stock number P458. Support for Caregivers: Coping with Cancer During the Holidays is the subject of a free teleconference offered by Cancer Care Inc. from noon to 1 p.m. EST on Wednesday, Nov. 11. Other upcoming teleconferences include Living with Non-Hodgkin's Lymphoma, Nov. 19; Nurturing the Spirit with Love, Meaning and Hope, Dec. 9; and When Your Child Has a Brain Tumor, Dec. 16. To register, call 1-800-813-HOPE or visit their web site at www.cancercare.org. Gilda's Club Chicago provides groups, lectures, workshops and other activities for men, women, teens and children with cancer, plus their families and friends, at no charge. Other Gilda's Clubs have opened recently in New York, Florida and Michigan, and plans call for additional locations next year in Ohio, Washington and Tennessee. For more information, phone Gilda's Club Chicago at 312-464-9900. The Public Health Institute's Breast Cancer Answers Project has launched a new resource for women seeking treatment alternatives for breast cancer. Their clinical trials finder system matches breast cancer survivors to a comprehensive database of clinical trials in California based on stage of disease, prior treatment and other specific disease criteria. Information about the trials has been translated into non-technical language. For information, visit their web site at www.canceranswers.org/clin-qry/ or phone 510-549-8910. The Oncology Nursing Society (ONS) has opened its Web site to the public. Topics of interest include clinical trials, spiritual care resources and non-Hodgkin's lymphoma patient education materials. Visit the Web site at www.ons.org. Grey House Publishing, in cooperation with the National Organization for Rare Disorders, has published The Directory for People With Rare Disorders. The directory contains descriptions of rare disorders, as well as organizations and government agencies that serve people with rare disorders. To order call 1-800-562-2139. Price is $145 plus shipping and handling. The Cure for Lymphoma Foundation offers two new books: Understanding Hodgkin's Disease and Understanding Non-Hodgkin's Lymphoma. To order call 212-213-9595. The Aplastic Anemia Association of Canada invites you to its Fourth Annual Silent Auction on Nov. 7, in Toronto, Ontario. For more, phone 416-235-0468 or 888-840-0039. The Aplastic Anemia Foundation of America will hold an Aplastic Anemia and Myelodysplastic Syndrome conference July 30-Aug. 1, 1999, in the Chicago area at the Hyatt Woodfield. For information call 1-800-747-2820. Correction: The Children's Leukemia Foundation of Michigan's Internet information was listed incorrectly in the 1998 Resource Directory. The correct e-mail address is: leukemiamichigan@voyager.net. The Web site is: leukemiamichigan.org. We regret the error. |
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