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Your Turn... (Readers: Please note that we have deleted the names, addresses and phone numbers of the people who have contributed their experiences and ideas to "Your Turn". However, we would be happy to direct you inquiry or communication to them. Please contact us through our email: help@bmtnews.org, by phone: 847.433.3313 / 1.888.597.7674, by fax 847.433.4599, or by mail: BMT Newsletter 2900 Skokie Valley Road, Suite B, Highland Park, Illinois 60035. Thank you.) “My 15-year-old daughter had a BMT for myelodysplasia in 1996 and recently began hormone replacement therapy. We would like to talk with others whose daughter began hormone replacement therapy at a similar age, following transplant.” M.C. “My 35-year-old husband had a stem cell transplant in August 1998 for non-Hodgkin’s lymphoma. In addition to the usual post-transplant trials, our three small children come home with all kinds of nice viruses that he catches. I’d like to correspond by e-mail with someone who has gone through a similar experience, and can offer hope that the love of my life will be around for a long time to come.” Kayceeab@aol.com “I had a stem cell transplant in 1997 for Hodgkin’s disease and am still getting weekly blood and platelet transfusions. I would like to talk with others who required blood and platelet transfusions 15 months after their transplant.” W.G. “My husband had a transplant in 1996. He is doing fine for the most part but his hands and fee get cold when the temperature drops below 70 degrees. I’d like to hear from anyone who has dealt with a similar problem.” S.W., email:dwhiteweb@aol.com “My 15-year-old son had a transplant in August 1998 and is now back at school full-time, dealing with fatigue and short-term memory challenges, especially in algebra. We’d like to hear from others who experienced this problem.” L.A., email:rala1@juno.com “I’ve had trouble getting back to my normal weight since my BMT two years ago. I’d like to hear from others who have been through this and can suggest solutions.” D.V., email:newjob@ricochet.net “Our grandson developed autoimmune hemolytic anemia six months after his allogeneic BMT. He is now 7, is still small for his age and is on many medications. We’d like to hear from others who’ve had experience dealing with these problems .” J&M D., email:MACODOUBLE@AOL.COM “My 3-year-old daughter is about to undergo a stem cell transplant for relapsed rhabdomyosarcoma. I’d like to hear from others whose young child has been transplanted for this disease.” C.B., email:IamHorsey@aol.com “I had an allogeneic BMT 41¼2 years ago. I’d like to hear from someone with, long-term chronic GVHD, particularly if they experienced muscle contractures and loss of range of motion.” M.M., email:mlmosty@hctc.net “I’d like to hear from anyone who has or has had mantle cell lymphoma, especially if you had a BMT or stem cell transplant to treat it.” L.V.L., email:lisavdl@banet.net |
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