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Your Turn (Readers: Please note that we have deleted the names, addresses and phone numbers of the people who have contributed their experiences and ideas to "Your Turn". However, we would be happy to direct your inquiry or communication to them. Please contact us through our email: help@bmtnews.org, by phone: 847.433.3313 / 1.888.597.7674, by fax 847.433.4599, or by mail: BMT Newsletter 2900 Skokie Valley Road, Suite B, Highland Park, Illinois 60035. Thank you.) “My 15-year-old son is planning to have an autologous stem cell transplant for Ewing’s sarcoma. I’d like to hear from others who have been through a similar experience.” N.T. “I will soon be undergoing a mini-transplant for multiple myeloma. I’d like to hear from others who have had a mini-transplant for this condition.” C.D. “I am 11 years post-transplant and have spinal stenosis. I’d like to talk with others experiencing this side effect after transplant.” K.R. “I had an autologous stem cell transplant for non-Hodgkin lymphoma 2 years ago, and now need an allogeneic transplant. I’d like to hear from others who have been through a similar experience.” J.C. “I am 25-years-old and a survivor of Hodgkin disease. I am compiling a cookbook of recipes for bone marrow transplant survivors. I plan to donate all the proceeds from this book to The American Institute for Cancer Research.” Please send your favorite recipe to M.G. The Survivors Cookbook. “I’d like to hear from stem cell and/or bone marrow transplant survivors who would be interested in a once-a-month support/networking group. We would meet in Chicago and have a facilitator. ” S.A. “I had a BMT 15 years ago at age 34 for non-Hodgkin lymphoma. The donor was my identical twin sister. I’d like to hear from others who have lived as long after transplant as I have, and would be interested in what long term side effects they’ve experienced.” V.G. |
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