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 (Readers: Please note that we have deleted the names, addresses and phone numbers of the people who have contributed their experiences and ideas to "Your Turn". However, we would be happy to direct your inquiry or communication to them. Please contact us through our email: help@bmtnews.org, by phone: 847.433.3313 / 1.888.597.7674, by fax 847.433.4599, or by mail: BMT Newsletter 2900 Skokie Valley Road, Suite B, Highland Park, Illinois 60035. Thank you.) “I am 38 years old and was diagnosed with myelofibrosis last December. I am preparing for a spleenectomy and bone marrow transplant. I’d like to hear from others with this disease.” M.G., melaniemcraegree@gateway.net. “In 1993 I was diagnosed with multiple myeloma. I had two stem cell transplants, four and one-half years of interferon, and all the other ‘stuff.’ This year, I had a double mastectomy for breast cancer, followed by Taxol. As a result of my experiences, I’ve become interested in ‘cancer etiquette’—what people say to those with cancer that is appropriate, and what is not. I’m interested in hearing others’ stories about how positive language helped them, and possibly compiling the stories into a book. Please send your ‘cancer etiquette’ stories to R.K., rklibrary@earthlink.net.  |
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