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A giant THANKS to everyone who responded to the article in the last newsletter about our Patient-to-Survivor Link program and volunteered to help. The response was overwhelming and we now have more than 800 volunteers who are willing to talk with transplant families and offer support! We could not offer this valuable service without each and every one of you! Although we can successfully link patients with survivors 99 percent of the time, we have a few outstanding requests from patients with which we need help. If you or someone you know might be an appropriate support person for one of the individuals below, please phone me (Jody) toll-free at 888-597-7674 or email me at help@bmtinfonet.org. Thanks! - Jody "I'm looking for someone with multiple myeloma who had both an autologous and allogeneic transplant." C.H. "I'd like to talk with someone who was transplanted for Diamond Blackfan anemia." G.H. "I had a stem cell transplant for stage 2B breast cancer, six rounds of CA, as well as radiation. I now have severe arthritis and diabetes and am wondering if others have had similar problems." J.K.G. "I had an autologous transplant for Hodgkin's disease, relapsed and am now facing a mini allogeneic transplant. I'd like to talk to someone who has been through the same thing." D.F. "I would like to talk with someone who had a BMT for multiple sclerosis." J.B. "I had a mini allogeneic transplant after my breast cancer spread to my bones. Since then, I have developed cancer in my liver. I'd like to talk with someone who had a similar experience." C.B. "In 1999 I had an allogeneic BMT for Hodgkin's disease. I'm cancer-free which is great but I have had many side effects. The worst ones for me are psychological. I'd like to talk with others who've had a similar experience." J.N. "My nine-year old son has adrenoleukodystrophy. I'd like to talk with other parents whose child was transplanted for this disease." C.S. "I had an autologous stem cell transplant for lymphoma in October 2002. I haven't fully engrafted and am now considering a transplant using stem cells from my brother. I'd like to talk with others who have had delayed engraftment." M.F. "Our twelve-year old son has sideroblastic anemia. We would like to talk with other families of children with the same diagnosis." B.S. "I had a transplant for AML in 2001. My sister was my donor and now I have her blood type. I don't know if anyone else has felt like this, but I feel like something inside me died, even though I'm still alive and doing fine physically. I also have trouble helping others with leukemia because I don't want to remember it. I keep trying to forget it. I'm hoping to find someone who can identify with what I'm saying and can tell me how they got past these feelings." J.G. "I'd like to talk to someone whose child was transplanted for Burkitt's-type leukemia." J.T. "Our three-year-old son has thalassemia major. We'd like to talk with a family whose child had this disease and underwent a transplant." D.S.
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