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"I am 24 and have neuroblastoma. I will have a transplant with an
unrelated donor. I'm really scared about the whole procedure and want to find
someone who is REALLY positive to talk to about it-someone who had a diagnosis
similar to mine." K
"I had a BMT for ALL in 1998. I was recently diagnosed with
congestive heart failure meaning heart muscle damage and the valves are not
functioning. I would like to hear from anyone else who has had heart problems
due to high dose chemotherapy." H
"I would like to talk with an adult who had a cord blood
transplant for myelodysplasia or similar disease." J
"I had a BMT for CML eight years ago and have considered myself
lucky. I relapsed last spring and have begun taking Gleevec. I suspect I may
need a donor leukocyte infusion (DLI) at some point. I'd like to hear from
anyone who had experience with any or all the above." F
"I had a BMT in 1994 and have had dry eyes since then. In the last
few years, I've become very sensitive to any light. I would like to hear from
anyone in this situation." L
"My 5-year-old son will soon have his second transplant for
SCIDS. I would like to talk with other families who have been through this and
would also like to know how couples get through it still being a couple. I'd
also like pointers on how to help a 5-year-old cope with the total isolation
required while being so far from home." M
"My mother was diagnosed with multiple myeloma and plasma cell
leukemia. I would like to talk with someone else with plasma cell leukemia."
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