|
"Here's something I'd like to share. I had a BMT in 1996. My
brother was my donor. My kids' dad enrolled in the National Marrow Donor
Program just to be able to do something. Last week he got the call that he was
a match for some one! I believe God just winked." K.S.
"My husband has developed myelodysplasia following his transplant
for AML in 1995. He has also developed adult onset Stills disease. We'd like to
talk with others who had a similar experience." S.M.
"My daughter died from GVHD in November 2001 after having an
allogeneic BMT in July 1998. Her sister was the donor. Has anyone else suffered
a similar loss after a sibling was the donor?" D.T.
"Due to GVHD, the skin on my hands is very dry, sometimes cracks
and practically turns white in the fall and winter. I've tried everything my
oncologist recommended but to no avail. I would like to hear from others who
had a similar problem to learn what worked for them." J.K.
"An update: A little over 10 years ago, our then 8-year-old
daughter was diagnosed with AML. She was a high risk case. We obtained your
newsletter and it was one of our key sources of information. She was
transplanted in 1994. Well, 10 years later our daughter is entering her senior
year in high school and is filing applications to several nursing schools. Your
newsletter, book and advice gave us the courage to make an informed choice
about BMTs when our doctor recommended against one. Thank you and may God bless
you." M.R.
"I had a mini-transplant for non-Hodgkin's lymphoma in June of
2001. Since last October, I have had GVHD affecting my skin, eyes and mouth. I
would like to talk others in a similar situation." P.F.
"I have non-Hodgkin's lymphoma and a condition called
bronchiectasis. I would like to speak to others who were transplanted with this
pre-existing condition." R.M.
"I had an autologous transplant for multiple myeloma in June. I
have a strange (new to me) weakness, particularly in my legs that does not seem
to concern the doctors. I'd like to talk with others who have had this
procedure to compare notes about recovery." M.D.
|
