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Issue #63
January 2004
A Site for Sore Eyes
Attention Caregivers: You're Not Crazy
NMDP Website Offers Improved Resources for Patients
Time to Order Your celebrating Life Calendar
Some Helpful Resources
Your Turn
Special Thanks
Newsbits
Order Form

Thanks to all of you who respond to the Your Turn requests. If you would like to speak with any of the people who have made the following inquiries, please call our office toll free at 888-597-7674 and we will give you the contact information.
-Jody

My husband has been taking Gleevec for two years and is doing quite well with the only side effect being muscle cramping. I would like to hear from others regarding the length of time they have been on Gleevec and their experiences with it. R.T.

My son received a matched related BMT 4 years ago for Wiskott-Aldrich Syndrome. He has had a terrific recovery but never completely got his hair back and now he is losing more. One of his thyroid numbers is low. Has anyone seen this before and what did they do about it? D.D.

I would like to speak with anyone who has experienced breathing difficulties post BMT. I was transplanted for MDS as a result of prior chemo for breast cancer. P.S.

I would like to speak with anyone experiencing mouth sores several years post-transplant. I was transplanted for CML in 1995. D.B.




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Many Thanks