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Issue #64
April 2004
April 2004
The Gift of Life Comes With a Price
Navigating the Insurance Maze
Marrow Power Reaches Out to Patients
Survivor/Quilt Artist's Work Showcased
Research Findings Hold Promise for Leukemia, Blood Cancer Patients
Coming Soon: Patient Handbook in Spanish
Your Turn
Special Thanks
Newsbits
Order Form

Thanks to all of you who respond to the Your Turn requests. If you would like to speak with any of the people who have made the following inquiries, please call our office toll free at 888-597-7674 and we will give you the contact information.
-Jody

"My daughter has Ewing's Sarcoma and is facing a transplant. I would like to speak with others who have been transplanted for this disease." I.L.

"I would like to talk with others who have been through a transplant for MDS/AML and have relapsed. I am interested in information on available drug therapies and what your experiences have been." J.S.

"I am looking for someone who was transplanted for CMML or for anyone who is diagnosed with this disease and living with it." J.V.

"My 8 year old son has adrenoleukodystrophy. I would like to hear from other families whose child has the same diagnosis." J.B.

"My 12 year old son has rheumatoid arthritis. I would like to speak with other families whose children have been transplanted for rheumatoid arthritis or other autoimmune diseases." D.S.

"I am a 66 year old female who was diagnosed with CLL 5 years ago. I'd like to hear from somebody is same situation." C.S.

"Ever since transplant 3 years ago this June, I've had pain (throbbing and aching) in my feet, ankles and lower legs and I also get charlie horses. It seems to have gotten worse over time. Is anyone else experiencing this?" C.P.

"I am interested in finding out information about transplants being done on patients with hairy cell leukemia." S.Y.

"I am two-and-a-half years post-transplant and would like to speak with other survivors about things like fatigue and difficulties returning to work." C.L.




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