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Issue #65
October 2004
October 2004

Charting the Future of Cord Blood Transplants
Celebrating Life Calendar
Woman Focuses Efforts on Young Adult Needs
NMDP Offers Patient and Physician Education Programs
Your Turn
Special Thanks
Newsbits
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National Marrow Donor Program® Offers Patient and Physician Education Programs

National Marrow Donor Program® (NMDP) helps people who need a life-saving marrow or blood cell transplant. The NMDP connects patients, doctors, donors and researchers to the resources they need to help more people live longer and healthier lives. To achieve its mission, the NMDP searches its donor Registry - the largest listing of volunteer donors and cord blood units in the world. It matches patients with the best donor or cord blood unit using innovative science and technology. And it supports patients and their doctors through case management and education. New or updated information available to patients and physicians from NMDP is listed below.

Spanish Education Materials for Transplant Patients

Moving Toward Transplant: Step One is designed to help patients when a transplant may be a treatment option. This booklet helps patients understand the transplant process and decide whether transplant is a treatment option for them. The content includes a description of what a transplant is, how the NMDP can help, and a list of resources and transplant centers in the United States. (Available online in English at:
http://www.marrow.org/PATIENT/moving_toward_transplant_step_1.html.
See box below for ordering in Spanish.)

The Transplant Journey: Step Two is a guide for patients who have been referred for unrelated donor marrow or blood cell transplants. It includes information on what a patient can expect before, during and after a transplant. Practical guides and checklists are provided. (Available online in English at:
http://www.marrow.org/PATIENT/transplant_journey_step_2.html.
See box below for ordering in Spanish.)

Mapping the Maze: A Personal Financial Guide to Blood Stem Cell Transplant. For patients to use when planning for a transplant, the guide includes tips on record-keeping and assessing individual financial situations, health care coverage questions and information and budgeting worksheets. (Available online in English at:
http://www.marrow.org/cgi-bin/page.pl?id=231.
See box below to order in Spanish.)

Patient Teleconference

Step One: Moving Toward Transplant
December 8, 2004, noon, Central time

This session is designed specifically for patients who do not have a donor in their family. Participants discuss the basics of the unrelated donor transplant process, choosing transplant centers and how the transplant center works with the NMDP. Case managers provide insurance and resource information. A physician will join the meeting for a question-and-answer period. The teleconference is free; however, registration is required. Register by e-mail or by calling Dennise Lim, National Marrow Donor Program Office of Patient Advocacy, (888) 999-6743, ext. 3485. E-mail registrations should be sent to dlim@nmdp.org.

Updated Fact Sheets

"Basics of Marrow or Blood Cell Transplantation" and "Suggested Reading for Caregivers and Patients" are available by calling the National Marrow Donor Program Office of Patient Advocacy toll-free at
(888) 999-6743.

Medical Professional Online CME Program

An online CME program for medical professionals is available through Dec. 10, 2004. Advances in Non-Hodgkin's Lymphoma (NHL) Treatment: The Changing Role of Hematopoietic Cell Transplantation describes the current and future role of transplantation in the treatment of NHL. Faculty: James O. Armitage, M.D., University of Nebraska Medical Center, Omaha, Neb. More information is available on NMDP's Web site at http://www.marrow.org/cgi-bin/page.pl?id=232.

Spanish Language Orders

To order Spanish patient education materials contact the National Marrow Donor Program Office of Patient Advocacy at (888) 999-6743. Spanish speakers are available.


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