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Once again, thanks to all of our wonderful volunteers, we were able to make many "links" between new patients and a transplant survivor. This type of support is invaluable to those facing a transplant. I hear regularly from patients who are so grateful to have been linked with someone willing to lend an ear. I also sometimes hear from our volunteers that the person referred to them didn't call. Please don't take it personally. It's hard to know what has happened between the time a preson requests a link and when we give him your name and number. Sometimes their needs change. Other times, just knowing that someone is out there who has survived a transplant is enough. If you are not yet a volunteer in our Patient-To-Survivor Link Program, but would like to be, call me toll-free at 800-597-7674. You can also sign up on our website at www.bmtinfonet.org. Click on Helpful Services. If you would like to respond to any of the following requests, please call me and I will put you in touch. "I am 65 years old and diagnosed with indolent follicular lymphoma and am considering a mini transplant. I would like to speak with someone (preferably similar in age to me) who had a mini transplant for the same." W.R. "My son had two transplants to cure chronic granulomatous disease. The second one was successful. I am looking for information on long-term side effects of BMT and wanting to talk to others who have survived multiple BMT's." C.R. "I had a matched related transplant in 1999 for AML and have had a CNS relapse. I would like to talk with anyone who had a similar experience." C.G. "I am 30 years old and had a recurrence of Hodgkin's disease after 10 years. I would like to speak with anyone who has had a Hodgkin's recurrence after a long period of time." J.R. "I am 9 years post autologous transplant for Hodgkin's disease and have experienced headaches for 7 years. Is anyone else experiencing this?" T.A. "I had a transplant in 2000 and will soon begin photopheresis treatment for GVHD. I would like to talk to someone familiar with this treatment." R.R.
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