From BMT Newsletter March 1995 Issue # 28 - BMTs for Chronic Myelogeneous Leukemia Reprinted by NYSERNet with Permission from BMT Newsletter
(Readers: Please note that we have deleted the names, addresses and phone numbers of the people who have contributed their experiences and ideas to "Your Turn". However, we would be happy to direct you inquiry or communication to them. Please contact us through our email: help@bmtnews.org, by phone: 847.433.3313 / 1.888.597.7674, by fax 847.433.4599, or by mail: BMT Newsletter 2900 Skokie Valley Road, Suite B, Highland Park, Illinois 60035. Thank you.)
"I would like to hear from others who have had a child post BMT using in-vitro fertilization." L.P.
"I am 53 years old and have an unusual multiple myeloma which is only detected by X-ray. I would like to hear from anyone who has experience with this." G.M.
"After fighting Hodgkins Disease for 13 years, I am scheduled for an ABMT this summer. I am frightened and do not want to proceed with it. I need to talk with people who have undergone this procedure." J.S.
"BMT Newsletter strikes again!! Your attorney referral service helped us resolve the problem of a child in North Carolina who was refused a BMT by Medicaid because Wilms Tumor was not on their list of approved BMT diagnoses. Thanks to the help of attorney Woody Connette, Medicaid agreed to pay for the transplant. Your knowledge of available resources helped solve what appeared to be an unsolvable problem." R.K., The Jeffrey Katz Bone Marrow Transplant Fund for Children.
"I would like to hear from anyone over 50 years old who has had a successful unrelated BMT for myelodysplasia." P.B.
"I am 36 years old and have CLL. I would like to hear from others close to my age who have had BMTs for this. My BMT is planned for sometime after my baby is born this spring." G.N.
"My wife Peggy is 24 and has AML. We are both registered nurses and would like to hear from other nurses who have leukemia or have had a BMT." T&P F.
"October 12, 1993 our 16-year-old son was diagnosed with AML. He had an allogeneic BMT in March 1994, went back to school in August, and began wrestling again in October! He has 'No Fear,' just like all the popular t-shirts read, and has a determination to be 'normal' and forget the whole thing.
"From the very beginning, his father and I seemed to have a much harder time coping with his illness and the transplant than he did. This is where the BMT Newsletter comes in. For us it's been so helpful to be able to read about other people's experiences, to know that there are survivors, and to know that someone else understands the fear and helplessness we've felt. Thanks for this service." S.D.
"My brother, a professor in pediatrics in India, has been diagnosed with CML and needs an allogeneic BMT. I'm exploring the possibility of having his BMT done in Australia, England or Singapore. If any readers have had experience with BMT centers in these countries, I would appreciate hearing from you." J.C., e-mail: jchangav@us.oracle.com.
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