Autologous Stem Cell Transplants: A Handbook for Patients
by Susan K. Stewart
Illustrations by Norm Bendell
This comprehensive and easy-to-read book is a "must" for patients considering a transplant using their own bone marrow or stem cells. The book walks the reader through what to expect before, during and after transplant and includes the perspective of patients and caregivers as well.
"This book is an essential part of my educational efforts with patients and their families. It explains in an understandable, but non-patronizing, way the rationale and procedures for bone marrow and blood stem cell transplantation. Covering a broad range of topics, it is a real gift for people who must quickly learn a complicated topic, as they struggle to cope with the stresses of a life-threatening illness."
Mary M. Horowitz MD MS
Scientific Director, Center for Blood & Marrow Transplant Research
History of Transplantation
A historical perspective on the use of bone marrow, peripheral blood stem cell and cord blood transplantion.
Nuts and Bolts of a Transplant
An overview of autologous stem cell transplants including an explanation of the differences between bone marrow and peripheral blood stem cell transplants, a description of how cells are collected for transplant, and the steps involved in preparing a patient for transplant.
Choosing a Transplant Center
A detailed description of key things to look for when choosing a transplant center, including how to interpret "success rates".
Insurance and Fundraising
An extremely helpful chapter that discusses how to handle a denial of insurance coverage, tapping into benefits available from life insurance policies, viatical settlements and how to find organizations that provide financial assistance.
The prospect of a transplant overwhelms patients and their loved ones. In this chapter you'll find tips on getting information, putting things into perspective, dealing with the sense of loss of control, coping with stress, accessing support services, keeping in touch with friends, and getting back to normal.
When Your Child Needs a Transplant
A guide for families on the array of issues facing them when a child needs a transplant including involving the child in decision-making, questions children ask, anxiety, life during transplant, loss of control, preparing children for medical procedures, siblings' care, marital stress, going home, and getting back to normal.
Prior to transplant, patients receive high dosages of chemotherapy and/or total body irradiation. This chapter addresses the short- and long-term side effects of the preparative regimen and puts them in perspective.
A detailed description of, and remedies for, the types of infections that can occur after transplant.
A clear explanation of the short- and long-term effects to the liver that may happen as a result of treatment.
A detailed description of nutritional problems that can occur after treatment, with concrete suggestions for overcoming them.
A thorough discussion of an array of drug and non-drug pain relief techniques.
The family caregiver plays a vital role in the recovery of transplant patients. Learn what challenges lie ahead and hear suggestions from former caregives about how to cope.
Sexuality After Transplant
Regaining sexual health after transplant is a challenge for many survivors. Learn what causes sexual difficulties and techniques to overcome them.
Does a transplant mean you will never be able to parent a child? Not necessarily! Learn about assisted reproduction techniques that may enable you to conceive a child after treatment. Also resources fo adoption.
Planning for Survivorship
After transplant you'll need a plan to protect your health long-term. Learn what should be in the plan, what tests you should have annually to detect long-term side effects, and how to manage issues such as emotional wellbeing, chronic fatigue and changes in relationships.
About Blood Cells
A concise explanation of the different types of blood cells and their function.
Understanding Blood Tests
Learn what various blood tests measure and the values considered to be in the normal range.