Note:  All Workshop Times are Eastern Time

 

Saturday, July 11, 2020

10:00 AM   Eastern

  

Welcome and Keynote: Many Medicines Besides Drugs

Welcome:  Susan Stewart, Executive Director, BMT InfoNet
Presenter: Peter Gordon, Transplant Survivor and Author of Six Years and Counting: Love, Leukemia, and the Long Road Onward
Mr. Gordon will share some of the insights, lessons and coping tips he and his wife have learned during their transplant journey together.

11:00 AM

Strive to Thrive! How to Protect Your Health after a Transplant Using Donor Cells (Allogeneic Transplant)

Presenter: Areej El-Jawahri MD, Director of the Bone Marrow Transplant Survivorship Program, Massachusetts General Hospital
Learn about medical complications that can develop months or years after an allogeneic transplant. Learn how you can minimize the risk of developing problems and get appropriate treatment if a complication occurs.

Strive to Thrive! How to Protect Your Health after a Transplant Using Your Own Cells (Autologous Transplant)

Presenter: Peter McSweeney MD, Director of Cellular Therapeutics and Director of Long-Term Follow-Up, Colorado Blood Cancer Institute (CBCI) 
Learn about medical complications that can develop months or years after an autologous transplant. Learn how you can minimize the risk of developing problems and get appropriate treatment if a complication occurs.

12:30 PM

Your Eyes and Graft-versus-Host Disease

Presenter: Zhonghui Katie Luo MD, PhD, Instructor in Ophthalmology, Massachusetts Eye and Ear
Learn the symptoms of ocular graft-versus-host disease (oGVHD) and therapies available to treat them.

Ask the Pediatric Transplant Experts

Panelists:
  • Kenneth Cooke MD, Director, Pediatric Blood and Marrow Transplantation Program, The Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins
  • Leslie Lehmann MD, Clinical Director, Pediatric Hematopoietic Stem Cell Transplant Program, Dana-Farber Boston Children's Cancer and Blood Disorders Center
  • Marybeth Morris EdM, School Psychologist/Educational Specialist, Dana-Farber Boston Children's Cancer and Blood Disorders Center
Ask a panel of pediatric transplant experts about medical, emotional, social and learning issues your child may face after transplant.

2:00 PM

How Exercise Can Improve Fatigue, Stamina and Strength

Presenters:
  • Scott Capozza PT, MSPT, Board Certified Specialist in Oncologic Physical Therapy, Smilow Cancer Hospital Adult Survivorship Clinic at Yale Cancer Center
  • Scott Kramer PT, DPT, Board Certified Specialist in Oncologic Physical Therapy, University of Kansas Health System
  • Mari Taylor PT, DPT, CLT, Board Certified Clinical Specialist in Oncologic Physical Therapy, Brigham and Women’s Hospital
Learn how to manage fatigue with exercise appropriate for recovering transplant patients, and build your endurance.

 

Sunday, July 12, 2020

11:00 AM     

Riding the Emotional Roller Coaster of BMT Survivorship

Presenter: Katie Schoeppner MSW, LICSW, Supervisor, Counseling Services, Be The Match®
Learn strategies for managing emotional challenges after transplant, the benefits of peer support and professional counseling, and how to seek help online and in your community.

12:30 PM

Cognition after Transplant: Coping with Attention, Learning and Memory Issues

Presenter: Michael Parsons PhD, Neuropsychologist, Pappas Neuro-Oncology Center and Department of Psychiatry, Massachusetts General Hospital
Learn how memory, attention and learning challenges can affect life after transplant and strategies to manage them.

2:00 PM

Graft-versus-Host-Disease of the Gastrointestinal Tract and Liver

Presenter: Zachariah DeFilipp MD, Transplant Physician, Massachusetts General Hospital
Learn about symptoms of graft-versus-host disease in the gastrointestinal tract and /or liver after an allogeneic transplant, and treatment strategies.

 

Monday, July 13, 2020

11:00 AM   

Introduction to Chronic Graft-versus-Host Disease

Presenter: Corey Cutler MD, MPH, FRCPC, Medical Director, Adult Stem Cell Transplantation Program and Director, Stem Cell Transplantation Survivorship Program, Dana-Farber Cancer Institute
Learn what causes chronic graft-versus host disease (cGVHD) after a transplant using donor cells, which organs it affects and how it is managed.

12:30 PM

Fatigue and Transplant: New Insights 

Presenter: Kenneth Miller MD, Associate Chief, Division of Hematology/Oncology, Tufts Medical Center
Learn why chronic fatigue is common after transplant, factors that make it worse, and strategies to conserve energy and improve daily functioning.

3:00 PM

Optimizing Nutrition after Transplant

Presenter: Paula Charuhas Macris MS, RD, CSO, FAND, Nutrition Education Coordinator, Seattle Cancer Care Alliance
Learn about proper nutrition for recovering transplant recipients and common myths about about popular diets.

 

Tuesday, July 14, 2020

11:00 AM   

Breath of Life: Your Lungs after Transplant

Presenter: Jane Turner MD, Assistant Professor, Division of Respirology, Hamilton Health Sciences/McMaster University
Learn about lung and breathing issues that can develop after transplant and strategies to manage them.

12:30 PM

Returning to Work after Transplant

Presenter: Rachel Becker LMSW, Senior Director of Programs, Cancer and Careers
Get tips on managing common challenges and fears when returning to work after transplant. Know your rights and learn strategies to find the right job to fit your skills.

3:00 PM

Coping with the Stress of Caregiving

Presenter: Jamie Jacobs PhD, Director, Caregiver Research, Cancer Outcomes Research Program, Massachusetts General Hospital
Learn about challenges caregivers often face after transplant and strategies to manage them.
 

Wednesday, July 15, 2020

11:00 AM   

Women's Sexual Health after Transplant

Presenter: Sharon Bober PhD, Founder and Director, Sexual Health Program, Dana-Farber Cancer Institute
Learn about sexual difficulties women may experience after transplant and ways to improve your sexual health.

12:30 PM

Your Mouth and Chronic Graft-versus-Host Disease

Presenter: Nathaniel Treister DMD, DMSc, Chief, Division of Oral Medicine and Dentistry, Brigham and Women's Hospital; Clinical Director, Oral Medicine and Oral Oncology, Dana-Farber/Brigham and Women’s Cancer Center
Learn how chronic graft-versus-host disease can affect your mouth, and therapies available to treat the symptoms.

3:00 PM

CAR T-Cell and Other Immunotherapies

Presenter: Matthew Frigault MD, Assistant Program Director, Cellular Therapy Service, Massachusetts General Hospital
Learn how new cellular therapies, like CAR T-Cell therapy, can help patients with certain blood disorders.
 

Thursday, July 16, 2020

11:00 AM   

Managing Neuropathy after Transplant (pre-recorded)

Presenter: Sasha Knowlton MD, Assistant Director of Cancer Rehabilitation, Massachusetts General Hospital
Learn who's at risk for developing neuropathy after transplant, and strategies to manage the weakness and pain associated with neuropathy.

12:30 PM

Ask the Multiple Myeloma Experts

Panelists:
  • Jens Hillengass MD, Chief of Myeloma, Roswell Park Comprehensive Cancer Center
  • Elizabeth O'Donnell MD, Director of Lifestyle Medicine and Medical Oncologist in the Multiple Myeloma Disease Center, Massachusetts General Hospital
  • Muthalagu Ramanathan MD, Medical Co-Director, Blood and Marrow Transplant Program, UMass Memorial Medical Center
Ask a panel of multiple myeloma experts about transplants for myeloma, potential long-term side effects and therapies to minimize the risk of relapse.

3:00 PM

Navigating Insurance after Transplant

Presenter: Domna Antoniadis JD, Senior Staff Attorney, LegalHealth, New York Legal Assistance Group
Learn about your rights to access and use health insurance.
 

Friday, July 17, 2020

12:30 PM   

Chronic Graft-versus-Host Disease of Skin and Connective Tissues

Presenter: Milan Anadkat MD, Professor of Dermatology and Director of Clinical Trials, Washington University School of Medicine in St. Louis 
Learn how chronic graft-versus-host disease affects the skin after transplant, and therapies to treat it .
 

Wednesday, August 5, 2020

12:30 PM   

Managing Sleep Problems after Transplant

Presenter: Eric Zhou PhD, Faculty, Division of Sleep Medicine; Attending Psychologist, Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute and Boston Children's Hospital
Learn about common sleep problems after transplant, consequences of insufficient sleep and proven methods for falling and staying asleep.

3:00 PM

Men's Sexual Health after Transplant

Presenter: Eric Zhou PhD, Faculty, Division of Sleep Medicine; Attending Psychologist, Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute and Boston Children's Hospital
Learn about sexual health problems men may experience after transplant and strategies to manage them.

 

This amazing program is free but you must pre-register

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