Learn from experts and each other how to mange various challenges post transplant. 

Each workshops runs one hour and all times listed are CENTRAL TIME ZONE

 

Saturday, April 17, 2021 

11:00 AM   

  

Welcoming Remarks and Keynote Address

Welcome:  Susan Stewart, Executive Director and Founder, BMT InfoNet
Presenter: Rodney Curtis, Transplant Survivor, Photojournalist and Author of A 'cute' Leukemia
Mr. Curtis will share some of the insights, lessons and humor he learned during and after transplant.

12:15 PM

Late Effects after a Transplant Using Donor Cells (Allogeneic Transplant)

Presenter: Catherine Lee MD, Assistant Professor of Medicine in Division of Hematology/BMT, Huntsman Cancer Institute, University of Utah Health
Learn about medical complications that can develop months or years after a transplant using donor bone marrow, stem cells or cord blood. Learn how you can minimize the risk of developing problems and get appropriate treatment if a complication occurs.

Late Effects after a Transplant Using Your Own Cells (Autologous Transplant)

Presenter: R. Greg Bociek MD, Nebraska Medicine
Learn about medical complications that can develop months or years after a transplant using your own stem cells. Learn how you can minimize the risk of developing problems and get appropriate treatment if a complication occurs.

Late Effects after a Pediatric Transplant/Transitioning to Adult Care

Presenter: Robert Hayashi MD, Professor of Pediatrics in the Division of Pediatric Hematology/Oncology, St. Louis Children's Hospital, Washington University School of Medicine
Learn about complications that can arise early and long-term after a pediatric bone marrow transplant and how to help your child transition to adult care.

1:30 PM

Coping with Attention, Learning and Memory Problems after Transplant

Presenter: Shelli Kesler PhD, Associate Professor, Co-Chair of Survivorship and Supportive Care Research, Livestrong Cancer Institute, The University of Texas at Austin
Learn how memory, attention and learning challenges can affect life after transplant and strategies to manage them.

2:45 PM      

Introduction to Graft-versus-Host Disease

Presenter: Marcello Rotta MD,  Director of the Leukemia Service and Co-Director of Long Term Follow Up Service, Colorado Blood Cancer Institute, Presbyterian St. Luke's Hospital
Learn what causes graft-versus host disease (GVHD) after a transplant using donor cells, which organs it affects and how it is managed.

Sunday, April 18, 2021 

11:00 AM   

Managing Emotional Challenges after Transplant

Presenter: Harold Dean MSW, LCSWOSW-C Social Work Program Manager, University of Arkansas for Medical Sciences
Learn strategies for managing emotional challenges after transplant, the benefits of peer support and professional counseling, and how to seek help online and in your community.

Coping with the Stress of Caregiving

Presenter: Elizabeth Muenks PhD, Clinical Director of Psychological Services, University of Kansas Cancer Center
Learn about responsibilities of family caregivers and the challenges they face. Understand the importance of caregiver self-care and identify helpful self-care tools.

12:15 PM

Heart Health During and after a Transplant

Presenter: Saro Armenian DO, MPH, Director, Center for Survivorship Outcomes, City of Hope
Understand who is at risk for developing cardiac problems, learn which tests and procedures need to be done to detect problems, and life-style changes that can help reduce the risk of developing serious heart problems.

1:30 PM

COVID-19: What Transplant Patients Need to Know

Presenters:   
  • Erica Stohs MD, MPH, Assistant Professor, Division of Infectious Diseases, University of Nebraska Medical Center
  • Hannah Imlay MD, MS, Assistant Professor of Infectious Diseases, University of Utah
Learn how COVID-19 differs from other viruses, how a history of transplant impacts steps a survivor should take to prevent COVID-19, whether mutations of COVID-19 pose additional risks, and the latest on vaccinations.

2:45 PM

Your Eyes and Chronic Graft-versus-Host Disease

Presenter: Amy Lin MD, Associate Professor of Ophthalmology, John Moran Eye Center, University of Utah
Learn the symptoms of graft-versus-host disease in the eyes after a transplant using donor cells, and treatment options.

Monday, April 19, 2021 

11:00 AM

Your Mouth and Chronic Graft-versus-Host Disease

Presenter: Joel Epstein DMD, MSD, FRCD (c), RCS (Edin), Medical  Director, Dental Oncology Services, City of Hope
Learn how chronic graft-versus-host disease can affect your mouth, and therapies available to treat the disease and symptoms.

12:15 PM

Managing Sleep Challenges after Transplant

Presenter: Eric Zhou PhD, Dana-Farber Cancer Institute
Learn the role of sleep for recovering transplant patients, consequences of insufficient sleep and evidence-based approaches to falling and staying asleep.

1:30 PM

Bone Health after Transplant

Presenter: Joy Wu MD, PhDAssociate Professor and Vice Chair, Basic Research Division of Endocrinology, Stanford University School of Medicine
Learn how transplant can affect bone health, tests and procedures to monitor bone health and life style changes to improve bone health.

For Better or Worse: Changing Relationships after Transplant

Presenter: Tori Knox-Rice PhD, Oncology Psychologist, Colorado Blood Cancer Institute at Presbyterian St. Luke's Medical Center
Learn how transplant can impact relationships, strategies to avoid and resolve negative changes in relationships and the role of counseling in helping to make positive changes.

2:45 PM

Chronic Graft-versus-Host Disease of Skin and Connective Tissues

Presenter: Badri Modi MD, Assistant Clinical Professor of Dermatology, City of Hope
Learn how chronic graft-versus-host disease affects the skin after transplant, and therapies to treat it.

Transplant Outcomes in Older Adults with MDS and AML

Presenter: Gabrielle Meyers MD, Associate Professor, Center for Hematologic Malignancies, Oregon Health & Science University
Learn which older adults with AML or MDS are good candidates for transplant, likely outcomes, side effects and how transplant may impact quality of life.

Tuesday, April 20, 2021 

11:00 AM   

Medical Marijuana and Stem Cell Transplant: What Do We Know?

Presenter: Joseph Bubalo PharmD, BCOP, BCPS, Oncology Pharmacotherapy Specialist, Oregon Health &  Science University
Learn how cannabis products affect mood and pain, how the potency and quality of cannabis varies, and how cannabis use can affect the health of transplant patients.

Navigating Work after Transplant

Presenter: Joanna Fawzy Morales Esq., CEO, Triage Cancer
Learn about your employment rights during and after transplant including workplace accommodations, disability benefits and rights of family caregivers.

12:15 PM

Infections after Transplant

Presenter: Wes Brown MD, Professor of Medicine, Stanford Health Care
Learn who's at risk of developing infections both short- and long-term after transplant, tests and procedures to help monitor for infection, lifestyle changes to help minimize risk of developing an infection and when survivors should be re-vaccinated after transplant.

1:30 PM

Exercise to Improve Fatigue, Stamina and Strength

Presenters:
  • Scott Kramer PT, DPT, Board Certified Specialist in Oncologic Physical Therapy, University of Kansas Health System
  • Erin Sweetser PT, DPT,  Physical Therapist, Huntsman Cancer Institute and University of Utah Health
Learn how an exercise program tailored to the needs of recovering transplant patients can help reduce chronic fatigue, improve your stamina and increase your strength.

2:45 PM

Men's Sexual Health after Transplant

Presenter: Christian Nelson PhD, Memorial Sloan Kettering Cancer Center
Learn about sexual difficulties men may experience after transplant and ways to improve your sexual health.

Women's Sexual Health after Transplant

Presenter: D. Kathryn Tierney PhD, RN, Oncology Clinical Nurse Specialist, (retired) Stanford Health Care
Learn about sexual difficulties women may experience after transplant and ways to improve your sexual health.

Wednesday, April 21, 2021 

11:00 AM   

Graft-versus-Host-Disease of the Gastrointestinal Tract and Liver

Presenter: Karamjeet Sandhu MD, Assistant Clinical Professor, Department of Hematology and Hematopoietic Cell Transplantation, City of Hope 
Learn about symptoms of graft-versus-host disease in the gastrointestinal tract and liver after a transplant using donor cells, and treatment strategies.

Multiple Myeloma: Stem Cell Transplant and Beyond

Presenter: Frits van Rhee MD, PhD, Professor of Medicine and Clinical Director of the UAMS Myeloma Center, University of Arkansas for Medical Sciences
Learn when patients with myeloma should consider transplant, steps involved in transplant, maintenance therapy options after transplant, and new therapies to manage multiple myeloma.

12:15 PM

The Role of Nutrition in Long-Term Health after Transplant

Presenter: Paula Charuhas Macris MS, RD, CSO, FAND, Nutrition Education Coordinator, Seattle Cancer Care Alliance
Learn how nutrition affects organ function and health, how to manage eating difficulties, and whether popular diets provide sufficient nutrition for recovering transplant patients.

1:30 PM

Managing Neuropathy after Transplant

Presenter: Kelsey Barrell MD,  Assistant Professor Neurology, University of Utah Health
Learn who's at risk of developing various type of neuropathy after transplant, common symptoms and strategies to manage it. 

2:45 PM

How Mindfulness Can Help Relieve Stress

Presenter: Greg Flaxman LCSW, MPH, Clinical Oncology Social Worker, Simms/Mann-UCLA Center for Integrative Oncology
Learn how acceptance-based practices, like mindfulness and meditation, can reduce stress and improve quality of life, and how to integrate this into your daily life.

Thursday, April 22, 2021 

11:00 AM

Cancer/Transplant - Related Fatigue: What to Know. What to Do

Presenter: Ellen Manzullo MD, FACP, Professor of Medicine, The University of Texas, MD Anderson Cancer Center
Learn why chronic fatigue is common after transplant, factors that make it worse, and strategies to conserve energy and improve daily functioning.

12:15 PM

Understanding Health Insurance Options and Obstacles

Presenter: Gary Goldstein, Director of Transplant Services Operations, Stanford Health Care
Learn options for obtaining health insurance, different types of coverage and how to compare plans to secure best coverage.

Herbs and Supplements: Are They Safe? Do They Work?

Presenter: Maggie McCallen PharmD, BCOP, Clinical Pharmacy Specialist Hematology/Oncology, Mayo Clinic Arizona
Learn whether popular herbs and supplements improve health after transplant and how they may interact with prescribed medication.

1:30 PM

Secondary Cancers

Presenter: Peter McSweeney MD, ChB, Director of Long-Term Follow-up and Director of Cellular Therapy, Colorado Blood Cancer Institute at Presbyterian St. Luke's Medical Center
Learn who is at risk to develop a second cancer after transplant, the most common second cancers and tests to catch them early.

2:45 PM

CAR T-Cell Therapy: It's Role after Transplant

Presenter: Matt Lunning DO, FACP, Associate Professor , Division of Hematology/Oncology, Nebraska Medicine
Learn how new cellular therapies, like CAR T-Cell therapy, can help transplant patients.

Friday, April 23, 2021 

11:00 PM

Pulmonary Problems after Transplant

Presenter: Joe Hsu MD, MPH, Professor of Dermatology and Director of Clinical Trials, Stanford Health Care 
Learn types of lung injury that can occur after transplant, risk factors for developing pulmonary difficulties and treatment strategies.
12:00 PM
(12:00 is full)
 

  2:00 PM

  6:00 PM

Just Write:  No Experience Required! 

How Writing Can Help the Healing Process

Writing is a helpful tool for healing. You do not need to be a poet. If you can make a grocery list you can do this! Expressing your thoughts and feelings with pen and paper can help you understand, process, and heal after a transplant. Join a small group of survivors or caregivers on Zoom for this interactive writing workshop. This workshop runs for one hour and 15 minutes.
 (Choose one-time slot) Click here to learn more

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