8:00 am: Registration Opens
9:30 am: Welcoming Remarks/Keynote Address
Your Personal Survivorship Plan: What, Why and How
Presenter: Linda Burns MD, National Marrow Donor Program/Be The Match® and Center for Blood and Marrow Transplant Research
Learn the components of a successful long-term survivorship plan and the role you, your family caregivers, your transplant team and your local doctors play in creating and implementing a successful plan.
10:30-11:30 am: (choose one)
Strive to Thrive: How to Protect Your Health after Transplant (also at 11:45)
Presenter (allogeneic transplant survivors): Catherine Lee MD, Utah Blood and Marrow Transplant Program, Huntsman Cancer Institute, University of Utah
Presenter (autologous transplant survivors): Peter McSweeney MD, Ch.B, Colorado Blood Cancer Institute at Presbyterian St. Luke’s Medical Center
Learn about medical complications that can develop months or years after transplant. Learn how you can minimize the risk of developing problems and get appropriate treatment if a complication occurs.
Managing Emotional Challenges after Transplant (also at 11:45)
Presenter: Melanie Stachelski MA, Colorado Cancer Counseling; transplant survivor
Learn strategies for managing emotional challenges that can occur after transplant, the benefits of peer counseling and professional counseling, and how to seek help online and in your community.
Optimizing Nutrition after Transplant (also at 2:15)
Presenter: Katie Harper MS, RD, CNSC, CSO, University of Colorado Hospital Blood Disorders Center
Panelist: Sommer Gaughan RD,University of Colorado Hospital Blood Disorders Center
Learn about the role of nutrition after transplant, strategies for managing eating difficulties, and common myths about cancer and nutrition.
Cognitive Effects of Cancer Treatment: Chemobrain and How to Treat It (also at 2:15)
Presenter: David Sabsevitz PhD, ABPP-CN, Medical College of Wisconsin
Learn how transplant can affect learning, memory and organizational skills, and strategies you can use to minimize the impact on daily living.
The Mind/Body Connection: How It Can Help Transplant Survivors (also at 11:45)
Presenter: Timothy Sannes PhD, University of Colorado Hospital Blood Disorders Center
Learn what we know about the importance of promoting mind-body connections for recovering transplant survivors, and how mind-body interventions can promote psychological health.
Pediatric Track: Growth, Thyroid, Puberty and Other Endocrine Issues after a Childhood BMT
Presenter: Philip Zeitler MD, PhD, Children’s Hospital Colorado
Learn how transplant can affect your child's thyroid function, growth, puberty and other endocrine functions. Learn who's at risk for developing these problems and how to manage them if they occur.
11:45 -12:45 pm: (choose one)
Introduction to Chronic Graft-versus-Host Disease (also at 2:15)
Presenter: Jonathan Gutman MD, University of Colorado Hospital Blood Disorders Center
Learn what causes chronic graft-versus-host disease (GVHD) after a transplant using donor cells, which organs it affects, and how it is managed.
Yoga and Meditation for Patients and Caregivers (also at 2:15)
Presenter: Genny Stepaniak RYT200, Willow Tree Yoga; transplant survivor
Try some simple yoga and meditation techniques you can use to reduce stress.
Pediatric Track: Protecting Your Child’s Health Long Term/Transitioning to Adult Care
Presenter: Kristen Beebe MS, PA-C, The Blood and Marrow Transplant Program at Mayo Clinic Arizona and Phoenix Children's Hospital
Learn about cardiovascular issues, pulmonary complications and secondary cancers that can occur after a pediatric transplant, and how to help your child transition from pediatric to adult healthcare.
Managing Emotional Challenges after Transplant (also at 10:30)
Strive to Thrive: How to Protect Your Health After Transplant (also at 10:30)
Optimizing Your Nutrition after Transplant (also at 10:30)
1:00-2:00 pm: Lunch and Presentation with Special Guest
2:15-3:15 pm: (choose one)
Take a Breath! Managing Breathing Problems after Transplant
Presenter: Kenneth Cooke MD, The Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins
Learn about infectious and non-infectious lung problems that can occur after transplant, risk factors for developing these problems and treatment options.
Managing Sleep Problems after Transplant
Presenter: Eric Zhou PhD, Dana–Farber Cancer Institute
Learn about the consequences of insufficient sleep on physical and psychological health after transplant, barriers to getting enough sleep, and evidence-based approaches to falling and staying asleep.
Pediatric Track: Helping Your Child with Learning and Organizational Challenges after Transplant
Presenter: Christa Hutaff-Lee PhD, Children's Hospital Colorado
Presenter: Andrea Miele PhD, Children's Hospital Colorado
Learn about organizational and learning challenges that can occur after your child’s transplant, and strategies to use and at home and at school to assist children with these challenges.
Introduction to Chronic Graft-versus-Host Disease (also at 11:45)
Cognitive Effects of Cancer Treatment: Chemobrain and How to Treat It (also at 10:30)
Optimizing Nutrition after Transplant (also at 10:30)
Yoga and Meditation for Patients and Caregivers (also 11:45)
3:30-4:00 pm: Plenary Session
4:15-5:45 pm: Networking Groups
Relaxing, small group discussions with other survivors, caregivers and family members to share experiences and ideas about managing life after transplant. Meet new friends, say what's on your mind, and find support.
6:00-7:00 pm: Social Hour
Sunday, April 29th Agenda