Agenda for Saturday, May 2, 2020

Celebrating a Second Chance at Life Survivorship Symposium - Saturday, May 2, 2020 Agenda

Agenda for Saturday, May 2, 2020

8:00 am:  Registration Opens

9:30 am:  Welcoming Remarks/Keynote Address

Many Medicines Besides Drugs

Presenter:  Peter Gordon, Transplant Survivor
Mr. Gordon will share some of the insights, lessons and coping tips he and his wife have learned during their transplant journey together.
 

10:30-11:30 am: (choose one)

Strive to Thrive! How to Protect Your Health after an Allogeneic Transplant (using a donor) (also at 11:45)

Presenter: Areej El Jawahri MD, Massachusetts General Hospital​ (after a transplant using donor cells)
Learn about medical complications that can develop months or years after transplant. Learn how you can minimize the risk of developing problems and get appropriate treatment if a complication occurs.
 

Strive to Thrive! How to Protect Your Health after an Autologous Transplant (using your own) (also at 11:45)

Presenter: Malgorzata McMasters MD, Beth Israel Deaconess Medical Center (after a transplant using your own cells)
Learn about medical complications that can develop months or years after transplant. Learn how you can minimize the risk of developing problems and get appropriate treatment if a complication occurs.
 

Riding the Emotional Roller Coaster of Survival (also at 11:45)

Presenter:  Jennifer D'Alotto MSW, LICSW, Massachusetts General Hospital
Learn strategies for managing emotional challenges that can occur after transplant, the benefits of peer counseling and professional counseling, and how to seek help online and in your community. 
 

Optimizing Nutrition after Transplant: Facts and Myths about Popular Diets (also at 2:15)

Presenter:  Paula Charuhas Macris MS,RD,CSO, FAND, Fred Hutchinson Cancer Research Center/Seattle Cancer Care Alliance
Learn about the role of nutrition for recovering transplant patients, strategies for managing eating difficulties, and common myths about nutrition.
 

Your Personal Survivorship Plan: What, Why and How

Presenter: Tara Roy NP, University of Massachusetts Medical Center
Learn the components of a successful long-term survivorship plan and the role you, your family caregivers, your transplant team and your local doctors play in creating and implementing a successful plan.
 

Ask the Pediatric Transplant Experts (also at 11:45) 

  • Leslie Lehnmann MD, Dana-Farber/Boston Children's Cancer and Blood Disorders Center
  • Sarah Tarquini PhD, Dana-Farber/Boston Children's Cancer and Blood Disorders Center
  • Marybeth Morris EdM, Dana-Farber/Boston Children's Cancer and Blood Disorders Center
Ask a panel of pediatric transplant experts about medical, emotional, social and learning issues your child is facing after transplant.
 
  • 11:45 -12:45 pm: (choose one)

    Introduction to Chronic Graft-versus-Host Disease (GVHD)

    Presenter Corey Cutler MD, MPH, FRCPC, Dana-Farber Cancer Institute
    Learn what causes chronic graft-versus host disease (GVHD) after a transplant using donor cells, which organs it affects, and how it is managed.
     

    Yoga and Meditation  (also at 2:15)

    Presenter: Ann Biese 200 E-RYT, 500 RYT Good Karma Yoga
    Try some simple yoga and meditation techniques you can use to reduce stress.
     

    Riding the Emotional Roller Coaster of Survival (also at 10:30)

    Strive to Thrive: How to Protect Your Health After an Allogeneic Transplant (using a donor) (also at 10:30)

             Strive to Thrive: How to Protect Your Health After an  Autologous Transplant (using your own) (also at 10:30)

    Ask the Pediatric Transplant Experts (also at 10:30)

    1:00-2:00 pm:  Lunch and Presentation with Special Guest

    2:15-3:15 pm:  (choose one)

    Medical Marijuana: Is It Safe? Does it Help?

    Presenter:  Benjamin Kematick PharmD, BCAP, Dana-Farber Cancer Institute
    Learn whether medical marijuana can help patients with issues such as appetite, pain and nausea, and whether it is safe for transplant survivors
     

    Coping with the Stress of Caregiving

    Presenter:  Jamie Jacobs PhD, Massachusetts General Hospital
    Learn about challenges caregivers often face long-term after transplant and strategies to manage them.
     

    Take a Breath! Managing Pulmonary Issues afterTransplant

    Presenter: Jane Turner MD, McMaster University Medical Center - Hamilton Health Sciences
    Learn about breathing issues that can develop after transplant and strategies to manage them.
     

    How Palliative Care Can Help Transplant Survivors

    Presenter: Alison Kavanaugh MSN,ACNP-BC, Massachusetts General
    Learn what palliative care is and how a palliative care specialists can improve quality of life after transplant.
     

    Optimizing Nutrition after Transplant: Facts and myths about Popular Diets (also at 10:30)

    Yoga and Meditation (also at 11:45)

    3:30-4:00 pm:   Reconvene for Networking Groups

    4:15-5:30 pm:   Networking Groups

    Relaxing, small group discussions with other survivors, caregivers and family members to share experiences and ideas about managing life after transplant. Meet new friends, say what's on your mind, and find support.
     

    5:45-7:30 pm:   Reception with light food

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    Sunday, May 3rd Agenda

    Speakers

    Registration/Fee

    Lodging

    Sponsors

    Exhibitors