Agenda for Sunday, April 29, 2018

7:00-8:30 am:    Continental Breakfast

8:30- 9:30 am:   (choose one)

Caregiver Challenges
Presenter: Benjamin Brewer PsyD, University of Colorado Hospital Blood Disorders Center
Learn about challenges caregivers face after transplant, and strategies to cope with stress and build resilience.
 
Managing Your Financial Health after Transplant
Presenter: Kimberly Curtis CFP, CLU, ChFC, CAP, AEP, MSFS, Wealth Legacy Institute
Learn strategies to pay off medical debt after transplant, the role of budgeting to manage future financial health, and estate planning basics.
 
Your Mouth and Chronic Graft-versus-Host Disease
Presenter: Nathaniel S. Treister DMD, DMSc, Brigham and Women’s Hospital and Dana-Farber Cancer Institute
Learn the symptoms of chronic graft-versus-host disease (GVHD) in your mouth following a transplant using donor cells (allogeneic transplant), and therapies available to treat it.
 
Managing Peripheral Neuropathy – Lessons from the Clinic (also at 9:45)
Presenter: Kelsey Barrell, MD, University of Utah Health Care
Learn about the different types of nerve pain, particularly in hands and feet, that can occur after transplant, and treatment options.
 
Manage Fatigue, Improve Your Stamina and Strength (also at 9:45)
Presenter: Scott Kramer PT, DPT, The University of Kansas Health System
Presenter: Ryan Rushton PT, DPT, CLT, Huntsman Cancer Institute, University of Utah
Try some simple exercises that can improve your stamina and strength and reduce fatigue.
 
Palliative Care:  How It Can Improve Your Survivorship Experience
Presenter: Karin Porter-Williamson MD, FAAHPM, The University of Kansas Health System
Palliative care specialists provide much more than end of life care. Learn how a palliative care specialist can help you manage symptoms and define and achieve your health goals.
 

9:45-10:45 am:   (choose one)

Chronic Graft-versus-Host Disease of the Gastrointestinal Tract and Liver
Presenter: Jeanne Palmer MD, Mayo Clinic Arizona
Learn how chronic graft-versus-host disease (GVHD) can affect the gastrointestinal tract and liver following a transplant with donor cells (allogeneic transplant), and strategies available manage it.
 
Tips on How to Get and Use Your Health Insurance
Presenter: Joanna Fawzy Morales Esq., Triage Cancer
Learn your options for obtaining health insurance, current laws regarding pre-existing conditions and other consumer protections, how to compare plans to secure the best coverage for you, and appealing a denial of an insurance claim. 
 
Male Sexual Health after Transplant
Presenter: Eric Zhou PhD, Dana-Farber Cancer Institute
Learn about sexual health problems men may experience after transplant and strategies to manage them.
 
Express Yourself! The Role of Expressive Writing in the Healing Process (also at 11:00)
Presenter: Rodney Curtis, Journalist, author and stem cell transplant survivor.
Try your hand at expressive writing and learn how using expressive writing to chronicle your transplant experiences can help with personal healing and growth.
 
Managing Peripheral Neuropathy – Lessons from the Clinic (also at 8:30)
 
Managing Fatigue, Improve Your Stamina and Strength (also at 8:30)
 

11:00 am-Noon:   (choose one)

Women’s Sexual Health after Transplant
Presenter: Jordan Rullo PhD, ABPP, CST, Mayo Clinic
Learn about sexual difficulties women may experience after transplant, and ways to improve the quality of sexual experiences.
 
Employment Rights and Disability Insurance Options
Presenter: Joanna Fawzy Morales Esq., Triage Cancer
Learn about accommodations you can request when returning to work, what you need to disclose about your medical history to an employer, how to obtain disability benefits, and the rights of family caregivers who take time off work.
 
Chronic Graft-versus-Host Disease of the Skin and Connective Tissue
Presenter: Catherine Lee MD, Utah Blood and Marrow Transplant Program, Huntsman Cancer Institute, University of Utah
Learn how chronic graft-versus-host disease (GVHD) can affect the skin and connective tissues following a transplant using donor cells (allogeneic transplant), and therapies available to manage it.
 
Managing Pain after Transplant
Presenter: Amy Wachholtz PhD, MDiv, MS, ABPP, University of Colorado Denver
Learn about the different types of pain transplant survivors may experience, techniques used to assess pain, and strategies for effective pain management.
 
Welcome to the Cancer Cafe: A Myeloma Patient's Journey to Transplant
Solo Performance and Discussion
Presenter: Judith C., PT, Pain Management Specialist and Feldenkrais Practitioner.
Panelist:  Rabbi Chaya Gusfield LLB, BCC, Palliative Care Chaplain and Judith C.'s partner
From the unexpected diagnosis of multiple myeloma, to her final decision on whether or not to undergo a stem cell transplant, Judith C. shares facts, laughs, and life lessons learned in this poignant solo performance. 
 
Ask the Transplant Experts (also at 12:15)
Panelists: 
  • Roberta Adams MD, The Blood and Marrow Transplant Program at Mayo Clinic Arizona and Phoenix Children's Hospital
  • Ajoy Dias MD, The University of Kansas Cancer Center Blood and Marrow Transplant and Cellular Therapy Program
  • Catherine Lee MD, Utah Blood and Marrow Transplant Program, Huntsman Cancer Center, University of Utah
  • Marcello Rotta MD, Colorado Blood Cancer Institute at Presbyterian St. Luke's Medical Center
  • Jeanne Palmer MD, Mayo Clinic Arizona
  • Enkhtsetseg Purev MD, PhD, University of Colorado Hospital Blood Disorders Center
  • Jeffrey Schriber MD, FRCP, HonorHealth Transplant Institute at the Virginia G. Piper Cancer Center
Ask a panel of transplant experts about medical issues that may occur after transplant.
 
Express Yourself: The Role of Expressive Writing in the Healing Process (also at 9:45)
 

12:15-1:15 pm:   (choose one)

Caring for Our Spirits: The Role of Spirituality in Recovery
Presenter: Michael Guthrie M.Div, BCC,  Colorado Blood Cancer Institutes at Presbyterian St. Luke's Medical Center
Learn about avenues for exploring spirituality and the role spirituality can play in healing after transplant.
 
Your Eyes and Chronic Graft-versus-Host Disease
Presenter: John Irvine MD, Doheny Eye Center UCLA
Learn the symptoms of chronic graft-versus-host disease (GVHD) in your eyes following a transplant using donor cells (allogeneic transplant), and therapies available to treat it.
 
Helping Children Cope after a Parent’s or Sibling’s Transplant
Presenter: Robert Casey PhD, Children's Hospital Colorado
Learn how children at different stages of development understand and react to a parent’s or sibling's transplant, and strategies parents can use to reassure and help their children cope.
 
Creating a Family after Transplant: Medically Assisted Reproduction and Adoption Options
Presenter:  Serena Dovey MD, University of Colorado School of Medicine
Presenter: Melanie Stachelski MA, Colorado Cancer Counseling and transplant survivor
Learn strategies to create a family after transplant including medically assisted reproduction and adoption.
 
Ask the Myeloma Experts
Panelists:
  • Djordje Atanackovic MDHuntsman Cancer Institute, University of Utah
  • Siddhartha Ganguly MD, The University of Kansas Cancer Center
  • John Killip DDS, transplant survivor
  • Tomer Mark MD, MSc., University of Colorado Hospital Blood Disorders Center
  • Jeffrey Matous MD, Colorado Blood Cancer Institute at Presbyterian St. Luke's Medical Center
  • Jeffrey Schriber MD, FRCP, HonorHealth Transplant Institute at the Virginia G. Piper Cancer Center
Ask a panel of multiple myeloma experts about the multiple myeloma, treatment options and managing treatment side effects.
 
Ask the Transplant Experts (also at 11:00)
 

1:15-2:00 pm:   Light Lunch and Closing Ceremony

      Saturday, April 28, Agenda

Speakers

Registration

Lodging

Sponsors

Exhibitors