Agenda for Sunday, May 5, 2019

7:00-8:30 am:    Continental Breakfast

8:30- 9:30 am:   (choose one)

Secure Your Oxygen Mask First: How to Manage the Challenges of Caregiving
Presenter: Michelle Bishop PhD, Clinical & Health Psychologist,
Coping-With-Cancer.net
Learn about challenges caregivers often face long-term after transplant and strategies to manage them.
 
CAR-T and Other Immunotherapies: Their Role after Transplant
Presenter: Juan Carlos Varela MD, PhD, Florida Hospital (AdventHealth)
Learn how new cellular therapies, like CAR-T, may help some patients after transplant.
 
Your Mouth and Chronic Graft versus Host Disease (GVHD)
Presenter: Nathaniel Treister DMD, DMSc, Brigham & Women's Hospital/Dana-Farber Cancer Institute
Learn the symptoms of chronic graft-versus-host disease (GVHD) in your mouth following a transplant using donor cells (allogeneic transplant), and therapies available to treat it.
 
Managing Neuropathy after Transplant (also at 9:45)
Presenter: Sajeel Chowdhary MD, Lynn Cancer Institute-Boca Raton Regional Hospital
Learn about the different types of nerve pain that can occur after transplant and treatment options.
 
How Exercise Can Help with Fatigue and Improve Stamina and Strength (also at 9:45)
Presenter: Scott Kramer PT, DPT, The University of Kansas Health System
Presenter: Ryan Rushton PT, DPT, CLT, Huntsman Cancer Institute, University of Utah
Try some simple exercises that can improve your stamina and strength and reduce fatigue.
 
Tips for Getting and Using Health Insurance
Presenter: Jamie Ledezma Esq., Triage Cancer
Learn your options for obtaining health insurance, current laws regarding pre-existing conditions and how to compare plans to secure the best coverage for you.

 

9:45-10:45 am:  (choose one)

Chronic Graft versus Host Disease (GVHD) of the Gastrointestinal Tract and Liver
Presenter: Trent Wang DO, MPH, University of Miami Hospital and Clinics/Sylvester Comprehensive Cancer Center
Learn how chronic graft-versus-host disease (GVHD) can affect the gastrointestinal tract and liver following a transplant with donor cells (allogeneic transplant), and strategies available manage it.
 
Coping with Learning, Memory and Attention Problems after Transplant (also at 11:00)
Presenter: Margaret Booth-Jones PhD, Moffitt Cancer Center & Research Institute
Learn how memory, attention and learning challenges that can affect life after transplant and strategies to manage them.
 
Men's Sexual Health after Transplant
Presenter: Eric Zhou PhD, Dana-Farber Cancer Institute
Learn about sexual health problems men may experience after transplant and strategies to manage them.
 
Express Yourself! The Role of Expressive Writing in the Healing Process (also at 12:15)
Presenter: Heather Harpham, Writer, Teacher, Performer and Parent of a pediatric transplant survivor
Try your hand at expressive writing and learn how using expressive writing to chronicle your transplant experiences can help with personal healing and growth.
 
Managing Neuropathy after Transplant (also at 8:30)
 
How Exercise Can Help with Fatigue and Improve Stamina and Strength (also at 8:30)
 

11:00 am-Noon:  (choose one)

Women's Sexual Health after Transplant
Presenter: Kristine Donovan PhD, MBA, Moffitt Cancer Center & Research Institute
Learn about sexual difficulties women may experience after transplant and ways to improve the quality of sexual experiences.
 
Medical Marijuana: Is It Safe? Does It Help?
Presenter: Cindy O'Bryant PharmD, BCOP, Skaggs School of Pharmacy and Pharmaceutical Sciences/University of Colorado Cancer Center
Learn whether medical marijuana can help patient with issues such as pain and nausea, and whether it is safe for transplant survivors
 
Chronic Graft versus Host Disease (GVHD) of the Skin and Connective Tissue
Presenter: Joseph Pidala MD, PhD Moffitt Cancer Center & Research Institute
Learn how chronic graft-versus-host disease (GVHD) can affect the skin and connective tissues following a transplant using donor cells (allogeneic transplant), and therapies available to manage it.
 
Spirituality in the Healing Process: What It is and Why It Matters
Presenter: Peter Zografos, D.Min., M.Div., Moffitt Malignant Hematology and Cellular Therapy Program at Memorial Healthcare System
Learn the role spirituality can play in healing after transplant and avenues for exploring spirituality
 
Ask the Transplant Experts (also at 12:15)
Panelists: 
  • Hugo Fernandez MD, Moffitt Malignant Hematology and Cellular Therapy Program at Memorial Healthcare System
  • Mohamed Kharfan-Dabaja MD, MBA, FACP, The Blood and Marrow Transplantation and Cellular Therapy Program at Mayo Clinic in Florida
  • Asmita Mishra MD, Moffitt Cancer Center & Research Institute
  • Shahram Mori MD, PhD, Florida Hospital (AdventHealth)
  • Juan Carlos Varela MD, PhD, Florida Hospital (AdventHealth)
  • John Wingard MD, UF Health Blood and Marrow Transplant Program                                                                                           

Ask a panel of transplant experts about medical issues that may occur after transplant.

Coping with Learning, Memory and Attention Problems after Transplant (also at 9:45)
 

12:15-1:15 pm:  (choose one)

Employment Rights and Disability Insurance
Presenter: Jamie Ledezma Esq., Triage Cancer
Learn about accommodations you can request when returning to work, what you need to disclose about your medical history to an employer, how to obtain disability benefits, and the rights of family caregivers who take time off work.
 
Your Eyes and Chronic Graft versus Host Disease (GVHD)
Presenter: Rahul Tonk MD, MBA, Bascom Palmer Eye Institute, University of Miami Miller School of Medicine
Learn the symptoms of chronic graft-versus-host disease (GVHD) in your eyes following a transplant using donor cells (allogeneic transplant), and therapies available to treat it.
 
Using Music to Help Recover from Transplant
Presenter: Erin Seibert MA, MT-BC, Johns Hopkins All Children's Cancer and Blood Disorders Institute
Explore the power or music to improve well-being after transplant.
 
Options for Building a Family after Transplant
Presenter:  Shayne Plosker MD, USF IVF and Reproductive Endocrinology
Presenter:  Katherine Roth, LCSW, MSW, Foundations for Growth
Learn strategies to create a family after transplant including medically assisted reproduction and adoption.
 
Ask the Myeloma Experts
Panelists:
  • Sikander Ailawadhi MD, The Blood and Marrow Transplantation and Cellular Therapy Program at Mayo Clinic in Florida
  • Melissa Alsina MD, Moffitt Cancer Center & Research Institute
  • Denise Pereira MD, University of Miami Hospital and Clinics/Sylvester Comprehensive Cancer Center
  • Jyotishankar Raychaudhuri MD, Moffitt Malignant Hematology and Cellular Therapy Program at Memorial Healthcare System 
Ask a panel of multiple myeloma experts about the multiple myeloma, treatment options and managing treatment side effects.
 
Ask the Transplant Experts (also at 11:00)
 
Express Yourself!  The Role of Expressive Writing in the Healing Process (also at 9:45)
 
 

1:15-2:15 pm:   Light Lunch and Closing Ceremony

Saturday, May 4, Agenda

Speakers

Registration/Fee

Lodging

Sponsors

Exhibitors