Agenda for Sunday, May 3, 2020

7:00-8:30 am:    Continental Breakfast

8:30- 9:30 am:   (choose one)

Your Eyes and Chronic Graft-versus-Host Disease (GVHD)

Presenter: Zhonghui Katie Luo MD, PhD, Massachusetts Eye and Ear
Learn the symptoms of chronic graft-versus-host disease (GVHD) in your eyes following a transplant using donor cells (allogeneic transplant), and therapies available to treat it.
 

Managing Neuropathy after Transplant (also at 9:45)

Presenters:
  • Sasha Knowlton MD, Massachusetts General Hospital
  • Deborah Forst MD, Massachusetts General Hospital
Learn about the different types of nerve pain that can occur after transplant and treatment options.
 

How Exercise Can Help Improve Fatigue, Stamina and Strength (also at 9:45)

Presenters:
  • Scott Capozza PT, MSPT, Smilow Cancer Center/Yale New Haven
  • Scott Kramer PT, DPT, The University of Kansas Health System Hospital
  • Mari Taylor PT, DPT, CPT, Brigham and Women's Hospital
Try some simple exercises that can improve your stamina and strength and reduce fatigue.
 

Women's Sexual Health after Transplant

Presenter: Sandy Falk MD, Dana-Farber Cancer Institute
Learn about sexual difficulties women may experience after transplant and ways to improve the quality of sexual experiences.
 

CAR-T and Other Immunotherapies: Their Role after Transplant

Presenter: Mathew Frigault MD, Massachusetts General Hospital
Learn how new cellular therapies, like CAR-T, may help some patients after transplant.
 

Express Yourself! The Role of Expressive Writing in the Healing Process (also at 12:15)

Presenter: Rodney Curtis, author and transplant survivor
Try your hand at expressive writing and learn how using expressive writing to chronicle your transplant experiences can help with personal healing and growth.
 

9:45-10:45 am:  (choose one)

Chronic Graft-versus-Host-Disease (GVHD) of the Gastrointestinal Tract and Liver

Presenter: Zachariah Defilipp MD, Massachusetts General Hospital
Learn how chronic graft-versus-host disease (GVHD) can affect the gastrointestinal tract and liver following a transplant with donor cells (allogeneic transplant), and strategies available manage it.
 

Managing Sleep Problems after Transplant

Presenter: Eric Zhou PhD, Dana-Farber Cancer Institute
Learn the role of sleep in recovery, consequences of insufficient sleep and approaches to falling and staying asleep.
 

Getting Back to Work after Transplant

Presenter: Rachel Becker LMSW, Cancer and Careers
When seeking new employment, what are you required/advised to disclose. Resources to help manage employment issues.
 

Coping with Attention, Learning and Memory Problems after Transplant (also at 11:00)

Presenter: Michael Parsons PhD,ABPP, Massachusetts General Hospital
Learn how memory, attention and learning challenges that can affect life after transplant and strategies to manage them.
 

Managing Neuropathy after Transplant (also at 8:30)

How Exercise Can Help with Fatigue and Improve Stamina and Strength (also at 8:30)

11:00 am-Noon:  (choose one)

Chronic Graft-versus-Host Disease (GVHD) of Skin and Connective Tissue

           Presenter: Stephanie Liu MD, PhD, Dana-Farber Cancer Institute
Learn how chronic graft-versus-host disease (GVHD) can affect the skin and connective tissues and therapies available to manage it.
         

         Men's Sexual Health after Transplant

Presenter: Eric Zhou PhD, Dana-Farber Cancer Institute
Learn about sexual health problems men may experience after transplant and strategies to manage them.
 

Managing Fatigue

Presenter: Kenneth Miller MD, Tufts Medical Center
Learn what causes and contributes to fatigue, strategies to conserve energy and how other factors effect fatigue
 

Using Mindfulness to Improve Quality of Life

Presenter: Cary Meyer PsyD, Lahey Health Cancer Institute
Learn how thoughts can affect the body's resilience and immunity.Mindfulness principles related to survivorship
 

Ask the Transplant Experts (also at 12:15)

Panelists: 
  • Russell Baur MD, Lahey Hospital and Medical Center
  • Jan Cerny MD, PhD, FACP, University of Massachusetts
  • Christine Duncan MD, Dana-Farber/Boston Children's
  • Areej El Jawahri MD, Massachusetts General Hospital

Ask a panel of transplant experts about medical issues that may occur after transplant

Coping with Attention, Learning, Memory and Problems after Transplant (also at 9:45)

12:15-1:15 pm;(choose one)

Your Mouth and Chronic Graft-versus-Host Disease (GVHD)

Presenter: Nathaniel Treister DMD, DMSc, Brigham and Women's Hospital
Learn the symptoms of chronic graft-versus-host disease (GVHD) in your mouth following a transplant using donor cells (allogeneic transplant), and therapies available to treat it.
 

Building a Family after Transplant

Presenters: 
  • Katie Brodigan BSN, MSN, RN, FNP, Dana-Farber Cancer Institute
  • Samantha Watson MBA, transplant survivor, Expect Miracles Foundation
Learn strategies to create a family after transplant including medically assisted reproduction and adoption.
 

Navigating Insurance after Transplant

Presenter: Domna Antoniadis Esq., New York Legal Assistance Group
Learn about accommodations you can request when returning to work, what you need to disclose about your medical history to an employer, how to obtain disability benefits, and the rights of family caregivers who take time off work.
 

Ask the Multiple Myeloma Experts

Panelists:
  • Jens Hillengass MD, Roswell Park Comprehensive Cancer Center
  • Elizabeth O'Donnell MD, Massachusetts General Hospital
  • Muthalagu Ramanathan MD, UMass Memorial Medical Center
Ask a panel of multiple myeloma experts about the multiple myeloma, treatment options and managing treatment side effects.
 

Ask the Transplant Experts (also at 11:00)

Express Yourself!  The Role of Expressive Writing in the Healing Process (also at 830)

1:15-2:15 pm:   Light Lunch and Closing Ceremony