It's not easy but keep moving forward.
I support GVHD patients because I struggled with GVHD for 3 years after my transplant. It wasn't easy but I got through it and I encourage anyone with GVH to just keep moving forward.
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Transplant Basics
- What is a Blood Stem Cell Transplant?
- Diseases Treated by Transplant
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Preparing for Transplant
- Choosing a Transplant Center
- Pre-Transplant Tests
- How Bone Marrow and Stem Cells are Collected
- Finding a Donor
- Being a Related Donor
- Being an Unrelated Donor
- Donating Umbilical Cord Blood
- Emotional Challenges
- Preparing Family and Friends
- Insurance and Financial Issues
- Protect Your Fertility
- Preparing For Your Child's Transplant
- Role of the Family Caregiver
- The Transplant and Early Recovery Period
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GVHD
- What is Graft-versus-Host-Disease
- Acute Graft-versus-Host Disease
- Chronic Graft-versus-Host Disease
- Skin and Chronic GVHD
- Joints, Fascia, Muscles and Chronic GVHD
- Eyes and Chronic GVHD (Ocular GVHD)
- Mouth and Chronic GVHD
- Liver, Gastrointestinal Tract and Chronic GVHD
- Lungs and Chronic GVHD
- Genitals and Chronic GVHD
- Nervous System and Chronic GVHD
- Infection and GVHD
- Drugs Used to Treat Graft-verus-Host Disease
- Coping with the Stress of GVHD
- GVHD Caregivers
- Clinical Trials/New Treatments for GVHD
- Directory of GVHD Clinics and Specialists
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CAR T-cell therapy
- What is CAR T-cell therapy
- Steps Involved in CAR T-cell Therapy
- Side Effects of CAR T-cell therapy
- Follow-Up Care after CAR T-cell Therapy
- Coping with Stress During CAR T-cell Therapy
- The Role of the Caregiver
- Financial Considerations for CAR T-cell Therapy Patients
- Does CAR T-cell Therapy Cure Cancer?
- CAR T-cell Therapy Directory
- CAR T-cell Therapy Clinical Trials
- Find Treatment
- Get Help
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Stories
- Spotlight a Survivor: Angioimmunoblastic T-cell Lymphoma: Amy's Story
- Acute Lymphoblastic Leukemia (ALL): Nev's Story
- Acute Lymphoblastic Leukemia (ALL): Nikki's Story
- Acute Lymphoblastic Leukemia (PH+ ALL) : Daniel’s Story
- Acute Lymphoblastic Leukemia (ALL): Alicia's and Connor's Story
- Acute Lymphoblastic Leukemia (ALL): Paige McCoy
- Acute Lymphoblastic Leukemia (ALL): Whitney's Story
- Acute Myelogenous Leukemia (AML) Greg's Story
- Acute Myelogenous Leukemia (AML): Peter's Story
- Acute Myeloid Leukemia (AML): Braulio's Story
- Acute Myeloid Leukemia (AML): Dawn's Story
- Acute Myeloid Leukemia (AML): Heather's story
- Acute Myeloid Leukemia (AML): Melanie's Story
- Acute Myeloid Leukemia (AML): Romayne
- Acute Myeloid Leukemia (AML): Stan's Story
- Acute Myeloid Leukemia (AML): Steve's Story
- Acute Myeloid Leukemia (AML): Tabatha's Story
- Acute Myeloid Leukemia (AML): Valerie's Story
- Aplastic Anemia: Nancy's Story
- Aplastic Anemia Sharon's Story
- Aplastic Anemia: Nancy's Story
- Very Severe Aplastic Anemia: A mother's path from caregiver to advocate
- Chediak-Higashi Syndrome: Aanamyauri's Story
- Chronic Myelogenous Leukemia (CML): Amanda's Story
- Chronic Myelogenous Leukemia (CML): Julio's Story
- Chronic Myelomonocytic Leukemia (CMML): Gordon's Story
- Chronic Myelomonocytic Leukemia (CMML): Laura's Story
- Follicular Lymphoma: Mary and Jim’s Story
- Hemophagocytic Lymphohistiocytosis (HLH): Logan's Story
- Hemophagocytic Lymphohistiocytosis (HLH): Mistha's Story
- Hodgkin Disease: Matt's Story
- Hodgkin Disease: Jacqueline’s Story
- Juvenile Myelomonocytic Leukemia: Joseph's Story
- Langerhans Histiocytosis - Jacob's Story
- Lymphoma: Gay Lynn's Story
- Lymphoma: Jeff's Story
- Lymphoma: Patricia's Story
- Lymphoma: Peter's Story
- Multiple Myeloma/Acute Myeloid Leukemia: Jim’s Story
- Multiple Myeloma Spencer's Story
- Multiple Myeloma: Thomas' Story
- Myelodysplastic Syndrome: Justin Regan's Story
- Myelofibrosis: Barry and Hope's Story
- Myelofibrosis: Justin's Story
- Non-Hodgkin Lymphoma Jon and Julie's Story
- PIK3CD Deficiency: Iliany Story
- Sézary Syndrome: Elizabeth's Story
- Sickle Cell Disease: Dominique's story
- Sickle Cell Disease: Khadijah's Story
- Share Your Story
- Video Library
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Events
- Celebrating a Second Chance at Life Symposium
- Support Group for Adult CAR T-cell Therapy Survivors
- Support Group for Parents of a Child, age 0-18, who is Living with Graft-versus-Host Disease (GVHD)
- 2024 Writing is Healing Workshop
- Stem Cell Transplant and CAR T-cell Therapy: The Patient and Care Partner Experience
- Join a Support Group
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Products
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Books
- Autologous Stem Cell Transplants: A Handbook for Patients
- Bone Marrow and Blood Stem Cell Transplants: A Guide for Patients
- Graft-versus-Host Disease What to Know, What to Do
- CAR T-Cell Therapy: What to Expect Before, During and After
- Trasplantes Autólogos de Células Madre: Un Manual para Pacientes
- Trasplantes de Médula Ósea y de Células Madre Sanguíneas: Una Guía Para Pacientes y sus Seres Queridos
- Enfermedad Injerto contra Huésped: Qué necesita saber. Qué necesita hacer.
- Terapia de Células CAR T: Qué Esperar Antes, Durante y Después
- BMT InfoNet's Resource Directory
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Brochures
- BMTInfoNet Introductory Brochure
- Helpful Hints for Caregivers
- Caring Connections Program
- Eating Well, Living Well after Transplant
- Trasplante de Células Madre y Terapia de Células CAR T (Intro Brochure)
- Tarjeta Consejos Utiles para los Cuidadores (Helpful Hints for Caregivers)
- Folleto del Programa Enlaces de Apoyo (Caring Connections Program Rack Card)
- ComerBien y Vivir Bien Despues Transplante (Eating Well, Living Well after Transplant)
- T-Shirts
- Gift Items
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Books
Kate
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Caregiver's Role
The family caregiver plays a vital role in the patient’s recovery.
Learn More -
Children and Transplant
Learn how to help your child through the transplant experience.
Learn More -
Graft vs. Host Disease
GVHD is a common problem after a transplant using donor cells.
Learn More
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