If current therapies are not controlling your graft-versus-host disease well, consider participating in a clinical trial. Clinical trials are carefully monitored research studies that test new drugs and therapies.
Patients who participate in a clinical trial have early access to new medications, although there is no guarantee that the drugs being studied will be effective.
Ask your doctor if there is a clinical trial that is appropriate for you. The Jason Carter Clinical Trials Program, operated by Be The Match®, can help you find a GVHD trial that you may want to consider. Visit the website, phone 888-814-8610 or go to ctsearchsupport.org for more details.
National Cancer Institute Chronic GVHD Program
An important resource for people living with chronic GVHD is the National Cancer Institute's chronic GVHD program. Patients between the ages of one and 75 can schedule an appointment for a comprehensive evaluation of their GVHD.
Specialists familiar with how chronic GVHD affects every part of a patient's body conduct the four-day physical examination, and make recommendations on how best to manage your disease.
The medical evaluation is free of charge and takes place ata the National Cancer Institute in Bethesda, Maryland. The program is part of a clinical trial designed to gather a national database of information about chronic GVHD so that better treatments can be developed. For details phone 240-858-3166 or click here to view online.
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